Parents > Uncertainty and loss

Uncertainty and loss

We hope that the information in this section will be useful to you at this very difficult time, and will help you and your family. For more information on uncertainty and loss we have a PDF document for parents and families which we have created with Together for Short Lives.

Close up of baby's hand holding the finger of a parent

Woman facing away from the camera looking out of a window to a tree with pink leaves

Bereavement support for you and your family

Every parent's experience is individual, and every circumstance is different, but the death of a baby can bring a grief that is deeper and lasts much longer than most…

Baby's tiny foot being held by a parent's thumb and index fingers

Being involved and making memories

When your baby has died around the time of birth, you may have only a few memories of him or her. You may also have very few keepsakes.

Doctors stood together speaking in a hospital setting

Palliative care

Medical care for preterm and sick babies has made huge advances. But some babies are so unwell that they are not likely to make a straightforward recovery.

Close up of nurse going over several paper documents laid out on the desk

End of life care

One of the hardest things about having a very sick baby is that no one can tell you exactly what to expect. Your baby’s condition can change quickly and therefore the…

Download 'Palliative Care Information for parents'

Download a PDF booklet of this information.